Aarp purpose prize fellow kristy baxter and mark griffin
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ADVICE TO OTHERS WHO WANT TO MAKE A DIFFERENCE If an opportunity that you’re passionate about presents itself, jump on it. If you feel daunted, or need help, don’t be afraid to ask. You’ll
find lots of people happy to join in, including people with expertise in the field who are thrilled to provide information and hold your hand throughout the entire journey. When we launched
understood.org, we didn’t know how far it would go. We thought we had a good idea, and obviously had a great number of resources behind us, but we never envisioned we’d have 2 million global
users each month. Sometimes, you just have to take a leap of faith and go for it. You never know, especially in the beginning, what will happen. In our case, the results were truly beyond
our wildest dreams. THE STRUGGLES THAT SHAPED OUR LIVES At a very young age, Kristy was diagnosed with dyslexia and dysgraphia (trouble writing) and struggled with reading and writing all
through her school years even though she was a very bright, verbal child. She was very fortunate that her parents were dedicated to her success, and got her the support she needed so that
she could go on to college and eventually a master’s in education from Columbia University. Mark has always dealt with attentional issues. He was never given a formal diagnosis, and unlike
Kristy, he never faced challenges in school because he always found coursework easy. His struggles instead appeared when he moved into the professional world and was faced with more complex
organizational tasks. He has a lot of trouble staying focused, and even today constantly scrambles to meet deadlines. As a result, both of us have always recognized and appreciated
difference. We believe that our diverse world is made up of people who learn differently, and that everyone should be respected and given the same opportunities. WHY OUR APPROACH IS UNIQUE
Traditionally, when a child shows signs of struggling at home, with friends, or at school, parents are often told “she just needs to try harder” or “he’ll outgrow it.” But in reality, she’s
already trying very hard, and he won’t be able to outgrow a brain-based issue such as ADHD. Parents are embarrassed, and feel alone. They don’t know what to do or where to turn. To make it
even trickier, many of these kids have a combination of learning and attention issues. Even the most well-intentioned school can have difficulty identifying the right set of supports. We’ve
really democratized knowledge, resources and access to experts previously available to few. A small minority of parents with vast financial resources can hire tutors and coaches and send
their children to expensive specialized private schools. But for the vast majority, daily life can be sad and frustrating as they watch their kids struggle at home and in school. When we
spoke to these parents, we quickly learned that many were overwhelmed by the jargon used by so many experts in the field. They wanted the most up-to-date, cutting edge information, but in
easy-to-understand, accessible language. We’ve given them exactly that. We’ve partnered with fifteen learning nonprofits, all with different strengths and capabilities. We have dozens of the
field’s leading educators, psychologists, researchers, physicians and advocates to answer parent questions and provide support. At Understood.org, we also make clear that we’re telling
parents what they can do, and never what they should do. We respect the fact that they — and only they — truly know their child, and that they are one of the most important influences on
them. These parents have often already been unfairly judged and stigmatized by others. We want them to feel empowered, not lectured to. We’ve also kept in mind that some of our parents may
also have learning and attention issues themselves. Understood.org was designed with the best practices of Universal Design for Learning (UDL). It works equally well on computer, tablet or
smartphone, and is available in English and Spanish, both with read-aloud mode.