Digital health learning collaborative for consumers
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BACKGROUND Technology is transforming many aspects of consumer health care experience, and applications that generate, capture, and leverage health data are proliferating. Federal
policymakers are also exploring how to facilitate the capture, sharing, and use of data across the health care system, including modifying and/or updating laws and regulations governing
health privacy and information exchange. The voices, perspectives, and priorities of patients, caregivers and advocates are essential in this changing milieu. Without this input, resulting
policies/practices may exacerbate harmful practices or discriminatory uses - especially for those with lower incomes, communities of color, immigrants, people with disabilities, and others
with less social capital.