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Rob, 40, who is now 7st, is four years on from his diagnosis in 2019, and Lindsey, 40, has to put in a Herculean shift each day to care for her husband. Yet despite the anguish, she

continues, lifting and carrying him from bed to chair, chair to car, all while refusing the assistance of carers and equipment. Rob’s bed was moved downstairs recently as Lindsey could no

longer manage to lift him up the stairs safely. Speaking bluntly, Lindsey says: “While I’m physically able, I will continue to do that for Rob, and I know he’d do the same for me. “We

haven’t really discussed the option of carers. We don’t want ­stairlifts, hoists and things, for me it can become quite clinical. "You just want to do what you can, while you can, for

as long as you can. He’s my husband, I want to care for him. You say those vows, in sickness and in health, that’s what you want to do. “He’ll often say, ‘Thank you for looking after me, I

wouldn’t be here if it wasn’t for you doing these things’. I know how grateful he is. “It’s not easy being a carer, but when I look at what Rob has had taken from him I’ve nothing to moan

about.” Burrow, a talismanic figure for Leeds Rhinos and England, is a private person, which highlights further his courage in being so transparent about the degenerative condition affecting

the nerves in the brain and spinal cord. Thanks to his mission, his and Lindsey’s endless fundraising, and that of Kevin’s, millions have been raised for MND research and care, as well as

significantly more public awareness.